10 November 2022, 9:15 - 16:15 CET

Dialogue on genomic medicine is important because it helps to address issues which relate to individuals and societies. For example, access to genomic testing and the consent to the storage of (individual) genomic data can have implications for healthcare, such as access to health services. Dialogue helps to foster understanding and appreciation of the concepts of altruism and solidarity as well as the principle of reciprocity. In agreeing to share genetic information, there are corresponding obligations on the part of researchers, healthcare professionals and the state to provide inter alia information to data donors, robust governance mechanisms and equitable access to the treatments developed.

  • SESSION I: What is public dialogue on genomic medicine, why is it important, and when is it most important to carry out?
  • SESSION II: Examples of public dialogues – results, consequences, lessons learned
  • SESSION III: Open exchanges with young people - personal perspectives
  • SESSION IV: Two-way dialogue with all stakeholders - are we listening and learning enough?
  • SESSION V: What level of public involvement and/or oversight are needed for development, governance and regulation of genomic medicine?

Teaser video by Mark Bale,
Rapporteur for the Workshop on public dialogue on genome medicine: