The Protocol sets down principles relating inter alia to the quality of genetic services, prior information and consent and genetic counselling. It lays down general rules on the conduct of genetic tests, and, for the first time at international level, deals with the directly accessible genetic tests for which a commercial offer could develop in future. It specifies the conditions in which tests may be carried out on persons not able to consent. Also covered are the protection of private life and the right to information collected through genetic testing. Finally, the Protocol touches on genetic screening.
The Czech Republic has signed the Additional Protocol to the Convention on Human Rights and Biomedicine concerning Genetic Testing for Health Purposes.
Strasbourg 26 October 2017
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Children participation in decision making
Early intervention on intersex children
Equitable access to innovative treatments
Equitable access to vaccine, treatment and equipment
Public dialogue on genomic medicine
Voluntary measures in mental healthcare