Public dialogue on genomic medicine

On the occasion of the 70th anniversary of the discovery of the DNA double helix, the Council of Europe Steering Committee for Human Rights in the fields of Biomedicine and Health (CDBIO) published a report regarding the public dialogue on genomic medicine.

The report, prepared by Mark Bale (UK, Rapporteur), reflects the main findings, positions and conclusions of a workshop organised on this theme in November 2022, and makes several recommendations, including: 

  • preparation of a practical guide on successful dialogue at local, national or regional level to support policy makers, funders and professionals who are implementing genomics in research or healthcare.  
  • Further work on genomic medicine reflects the principles of non-discrimination, especially of certain groups or individuals with an inherited genetic predisposition. Considering that genomic medicine may impact on insurance and employment, there is an opportunity to reinforce the principles of Recommendation of the Committee of Ministers to the member States on the processing of personal health-related data for insurance purposes, including data resulting from genetic tests. This includes the importance of “collective consultation” between all parties to increase confidence and transparency. 

Read the report >>