Details of Treaty No.203
|Title||Additional Protocol to the Convention on Human Rights and Biomedicine concerning Genetic Testing for Health Purposes|
|Opening of the treaty||Strasbourg, 27/11/2008 - Treaty open for signature by the Signatories to Treaty ETS 164|
|Entry into Force||01/07/2018 - 5 Ratifications including 4 member States.|
The Protocol sets down principles relating inter alia to the quality of genetic services, prior information and consent and genetic counselling. It lays down general rules on the conduct of genetic tests, and, for the first time at international level, deals with the directly accessible genetic tests for which a commercial offer could develop in future. It specifies the conditions in which tests may be carried out on persons not able to consent. Also covered are the protection of private life and the right to information collected through genetic testing. Finally, the Protocol touches on genetic screening.
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