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Human Rights and Biomedicine
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Human Rights and Biomedicine

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Human Rights and Biomedicine
  1. Home
  2. At a glance
    1. Steering Committee for Human Rights in the fields of Biomedicine and Health (CDBIO)
      1. Plenary meeting of the CDBIO
      2. Restricted
  3. Reference texts
    1. Oviedo Convention and its Protocols
    2. Recommendations
    3. Guides
  4. Topics
  5. HELP Online Training
  6. Events
  7. Cooperation activities
    1. Cooperation in Armenia
    2. Action plan for Belarus
  8. Resources
    1. Relevant caselaw of the European Court of Human Rights (ECHR)
    2. Relevant decisions of the European Committee of Social Rights (ECSR)
    3. Publications
    4. Videos
    5. Useful links
    6. Questionnaires
    7. Consultant reports
    8. Traineeships
  • Home
  • At a glance
    • Back
    • Steering Committee for Human Rights in the fields of Biomedicine and Health (CDBIO)
      • Back
      • Plenary meeting of the CDBIO
      • Restricted
  • Reference texts
    • Back
    • Oviedo Convention and its Protocols
    • Recommendations
    • Guides
  • Topics
  • HELP Online Training
  • Events
  • Cooperation activities
    • Back
    • Cooperation in Armenia
    • Action plan for Belarus
  • Resources
    • Back
    • Relevant caselaw of the European Court of Human Rights (ECHR)
    • Relevant decisions of the European Committee of Social Rights (ECSR)
    • Publications
    • Videos
    • Useful links
    • Questionnaires
    • Consultant reports
    • Traineeships
Siete qui:
  1. Human Rights and Biomedicine
  2. Events
  3. Conferences and symposia
  4. Workshop on public dialogue on genomic medicine
  5. Rapporteur

Rapporteur

Mark Bale

Mark Bale

Genomics policy advisor and UK Delegate to CDBIO (UK)

Independent consultant in genomics, policy and bioethics

 

Mark Bale has led Government policy at the intersection between research, healthcare, ethics. His work includes legislation on emerging and disruptive technologies, and engaging with public, patients and diverse stakeholders to shape policy and delivery. He has served on several international bodies, including the EU, OECD, WHO, UNESCO, and Council of Europe.

Until March 2022 he was policy advisor and Programme Director for the 100,000 Genomes and seconded to Genomics England. He also acted as Deputy Chief Scientific Advisor to the Department of Health providing policy leadership in regenerative medicine and gene therapy, genome editing, precision medicine and rare diseases. Mark was seconded to lead the UK’s G7 Presidency work on global pathogen surveillance during the COVID-19 pandemic.

Having now left the Civil Service, Mark has several advisory roles in genomic medicine with leading science and ethics bodies. He continues to represent the UK at the Council of Europe Steering Committee on Human Rights and Biomedicine (and was Chair of the predecessor Committee on Bioethics at the Council of Europe from 2014-2016).

 

Ongoing work


  Health Literacy

 Neurotechnologies

 Artificial Intelligence

 Children participation in decision making 

 Equitable access to healthcare

 Mental health care

  Strategic Plan 2026-2030

  

Social Rights, Health and Environment Directorate

Directorate General Human Rights and Rule of Law

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